International leaders who study and care for people whoβve lost their ability to speak recently gathered at ΒιΆΉΣ³»΄«Γ½ to discuss new therapy that can profoundly improve a clientβs quality of life.
Some 140 researchers and practitioners from across the United States and Canada came to discuss ways to serve individuals who have aphasia, a condition caused by a stroke or brain injury that affects two million Americans. Their focus was the βlife-participation approach to aphasiaβ to help clients regain their speech and meet their personal needs and goals.
AphasiaAccess, a Moorestown, N.J.-based nonprofit that promotes the approach, sponsored the 2017 Leadership Summit March 17-18 at FAIRWINDS Alumni Center.
βThe life-participation approach is a paradigm shift in how we think about the kind of life a person with aphasia can have,β said AphasiaAccess President Kathryn Shelley. She learned of the approach after her father had a stroke and she was desperate to find a way to help him.
βA lot of people who have had strokes and have aphasia are sitting at home,β said Janet Whiteside, director and founder of ΒιΆΉΣ³»΄«Γ½’s in the Communication Disorders Clinic and an inaugural member of AphasiaAccess. βWe believe itβs possible for people with aphasia to fully participate in life.β
Aphasia House was a perfect setting for the summitβs welcome reception March 16. The Central Florida Research Park facility offers therapy for clients with aphasia in a setting that simulates a home. Clients participate in therapy sessions in a comfortable living room, a spacious kitchen and thematically decorated rooms that evoke times in their lives and encourage communication.
For many of the summit participants it was the first opportunity to see Aphasia House in person.
βFrom the moment I walked in the front door, I was greeted with warmth and immediately recognized that the βhouseβ was welcoming, comfortable and perfectly appropriate for people with aphasia,β said Abbe Simon, a speech-language pathologist with Triangle Aphasia Project, a nonprofit in Cary, N.C.
βItβs thrilling to see it in living color,β said Elizabeth Hoover, clinical associate professor and clinical director of Aphasia Resource Center at Boston University. βJanetβs vision has been inspirational. You canβt exaggerate the influence she and this program have had on the aphasia therapy community.β
The summit participants also had an opportunity to meet Mark McEwen, a well-known CBS reporter who had a stroke and acquired aphasia in 2005. McEwen went through extensive speech, physical and occupational therapy to regain his speech and life. In recent years heβs spoken to clients at Aphasia House.
βYou have to have someone say itβs going to be okay, that thereβs hope,β McEwen said. βI want them to come away thinking, βIf he can do it, I can do it.β But you have to be stubborn and you have to stay focused.β
The reception launched two days of keynote presentations, breakout gatherings and poster sessions. Among the keynote topics were service operations and evaluation, client motivation in therapy, and using the media to influence communities. Seventeen roundtable discussions, 16 βshare and careβ sessions, and 39 poster presentations offered forums for the participants to present and learn about the latest strategies and activities that support life-participation therapy.
The schedule was effectively packed with content, but it also provided space for participants to build friendships and just be together, Shelley said.
Whiteside said she thought the summit was βsynergistic.β
βIt allowed researcher and practitioner to share collective thoughts to spawn new ideas,β she said. βIt both energized and applauded the work of those who care for people with aphasia.β
Top two photos by Tim Berry/AphasiaAccess