{"id":94069,"date":"2019-01-29T12:51:17","date_gmt":"2019-01-29T17:51:17","guid":{"rendered":"https:\/\/www.ucf.edu\/news\/?p=94069"},"modified":"2019-06-07T10:48:17","modified_gmt":"2019-06-07T14:48:17","slug":"patients-teach-illnesses","status":"publish","type":"post","link":"https:\/\/www.ucf.edu\/news\/patients-teach-illnesses\/","title":{"rendered":"Patients Teach Through Their Illnesses"},"content":{"rendered":"

John McLees was a first-responder on Sept. 11 and today he suffers from lupus, rheumatoid arthritis and respiratory problems he attributes to the dust and fumes he inhaled protecting others. On January 15, McLees became a retired police officer-turned teacher as he volunteered to share his life and medical condition with second-year Âé¶¹Ó³»­´«Ã½ medical students.<\/p>\n

McLees and five other patients with rare autoimmune and skin diseases \u2013 such as lupus, scleroderma and psoriasis \u2014 spoke \u00a0during the skin and musculoskeletal module directed by Shazia B\u00e9g, a rheumatologist at Âé¶¹Ó³»­´«Ã½ Health and assistant professor of internal medicine.<\/p>\n

\u201cWhen my patients hear that I teach, they immediately ask about helping me with my classes as they want to educate others about these rare diseases,\u201d says B\u00e9g, who treats five of the six volunteers.<\/p>\n

\n

\u201cI am hoping when the students leave here today they will be able to diagnose this disease early.\u201d \u2013 Roy Louden, Âé¶¹Ó³»­´«Ã½ Health patient<\/p>\n<\/blockquote>\n

\u201cThe diseases that I cover in my module are pretty rare, so my students get to talk to the patients and see these diseases that they may not ever see again. \u00a0Just to hear the patients\u2019 stories, see their symptoms and how they present with these illnesses really resonates better, as they can literally put a face to the disease.\u201d<\/p>\n

For Roy Louden, teaching others has become a way for him to cope with his illness. Louden suffers from scleroderma, an autoimmune rheumatic disease that affects approximately 300,000 Americans. He has been assisting B\u00e9g with her classes since 2012 and has a YouTube channel where he educates others about living with scleroderma. Now in the advanced stages of the disease, Louden\u2019s symptoms are visible \u2014 skin tightening and muscle wasting in his limbs has caused his hands and wrists to bend inward. But in its early stages, the disease is difficult to diagnose. Louden says he volunteers to speak at the medical school because he wants to help future doctors recognize his disease\u2019s early symptoms.<\/p>\n

\u201cA lot of scleroderma patients I\u2019ve met online say they went undiagnosed for years because some doctors can\u2019t recognize it or they don\u2019t remember it from med school if they even learn about it,\u201d Louden says. \u201cSo this is my way of helping, it\u2019s my way of staying positive and making impact. I am hoping when the students leave here today they will be able to diagnose this disease early.\u201d<\/p>\n

During the exercise, organized by B\u00e9g and Jeff Greenwald, assistant professor of dermatology, students rotated through small roundtable sessions where they engaged with each patient. They did not know their patient\u2019s disease but had about 15 minutes to review the patient\u2019s history and see current symptoms to reach a diagnosis. \u00a0They asked questions about symptoms, when they first appeared, and had patients show them photographs of previous skin lesions.<\/p>\n

McLees, who served as a New York Police Department sergeant, says he finds fulfillment in helping medical students learn. \u201cWhen I heard that Dr. B\u00e9g was a teacher, I volunteered to help her with her students in whatever way she needed,\u201d McLees says. \u201cIt\u2019s really rewarding for me knowing that I am helping to train the next generation of doctors, showing them a real life patient with these health issues which is beyond a textbook with pictures. And it\u2019s more than just teaching them about the diseases, they are also learning to interview and engage with patients in a compassionate way.\u201d<\/p>\n

\u201cIt\u2019s very easy to remember when you\u2019re engaging with an actual patient and seeing the visible symptoms of diseases.\u201d \u2013 Courtney Bell, Âé¶¹Ó³»­´«Ã½ medical student<\/p><\/blockquote>\n

First and second-year students usually develop their interviewing and diagnosing skills by working with \u201cstandardized patients\u201d \u2013 actors who pretend to have a medical condition. So for some, B\u00e9g\u2019s session was their first experience interviewing a real patient with a disease.<\/p>\n

\u201cWe learn about these diseases in class, but I felt way more engaged meeting the patients, and interviewing them to try to figure out what was wrong,\u201d says medical student Daralys Lopez. \u201cI feel like this was a nice change of pace to classes.\u00a0 I was also impacted by how positive and upbeat the patients were despite their illness.\u201d<\/p>\n

Second-year med student Courtney Bell says the interview sessions have made a lasting impression and have helped to cement the concepts she learned in class.<\/p>\n

\u201cYou can teach us a hundred diseases in three weeks, we won\u2019t remember everything. \u00a0But it\u2019s very easy to remember when you\u2019re engaging with an actual patient and seeing the visible symptoms of diseases,\u201d Bell says. \u201cI\u2019m not going to forget the time I met Mr. Louden or the 9-11 first responder with lupus. And this will definitely help us to remember these concepts years from now when patients come to us with these diseases.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"John McLees was a first-responder on Sept. 11 and today he suffers from lupus, rheumatoid arthritis and respiratory problems he attributes to the dust and fumes he inhaled protecting others. On January 15, McLees became a retired police officer-turned teacher as he volunteered to share his life and medical condition with second-year Âé¶¹Ó³»­´«Ã½ medical students. 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